5 July 2014

"Thoughts" 24 Rhyming Reflections of HME and CFS/ME by Helen Beeston

Helen Beeston has published a book of rhymes and is particularly keen to donate at least 5% of her proceeds to the Invest in ME Biomedical Research Fund. At least a further 5% will be donated to research into Hereditary Multiple Exostoses (HME), a condition that she was born with, resulting in operations from age 11 to 22. Helen's book is an easy and interesting read for friends and family, and will no doubt resonate will fellow "spoonies" out there.  Helen wrote:

Thank you for allowing me to add a guest blog. 
I have ME and have recently published a book about my journey. 
I wanted to tell you about it. It’s available in Kindle format and as a paperback from Amazon. At least 10% donation from royalties will go towards research (IiME and HME). 
Use the link below to Amazon, as that generates an extra donation to Invest in ME.

I've written some poems.
All printed in a lovely e-book
You’re welcome to take a look.
I read some out
To explain what my story is about.

It’s difficult to say how we feel,
Our symptoms are so very real.
At times we look well
Even if under a horrible spell.
I am sure that you will relate
And identify a similar trait.

I hope my humour will make you smile
And not run a mile.
They may make you feel sad
But hopefully only a tad.
Have handy some tissues
In case it opens any issues.

I may give you a tool
If you use it, that’s cool.
It’s very difficult to start
It needs to come from the heart.
It helps me make sense of the thoughts in my head
It could make you sleep better in bed.

Comments on the book received so far:

“Just finished your book it is really amazing, you should be really proud of it they are really great :) love the explanation really adds the personal touch :) xxx 

“just to say that I really liked your book and I could relate to a lot of what you said. We are always expected to be so upbeat in this society so people don't let on about all their fears,  unhappiness and feelings of inadequacy. Including so-called 'healthy' people! I think you are very brave to have written about your feelings - and a stroke of brilliance to do it in rhyme - it makes it very accessible somehow. Thanks again for your book!”

5 star rated “An excellent read. My son has the same condition so I could relate to it. I would certainly recommend”.

Congratulations Helen and thank you for supporting Invest in ME via Let's do it for ME! 

Remember that using this link to buy anything from Amazon generates an extra donation 
to Invest in ME at no extra cost to the buyer - http://amzn.to/1qwizdU

Thank-you for your support - Let's do it for ME!

*Let's do it for ME! is a campaign to help raise awareness of the work of independent UK charity Invest in ME (Research) and funds for the biomedical research into myalgic encephalomyelitis that the charity is organising and/or funding. Invest in ME is run entirely by unpaid volunteers who either have ME or are parents and carers of ME patients. They are driving the agenda of scientific biomedical research into diagnostic tests and treatments for myalgic encephomyelitis in UK in collaboration with international researchers of world renown - 2014 will be an exciting year for progress in M.E. research - you can help*

Let's do it for ME!
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