Today marks the sixth anniversary of the tragic death of Sophia Mirza, aged 32, from the effects of severe myalgic encephalomyelitis, and our thoughts today are of Sophia and her family.
Sophia's mother, Criona Wilson, created a website to publish details and related correspondence with those concerned with Sophia's case. Here are some extracts from Sophia and M.E:
“The object of this site is to show how and what was done to Sophia, so that maybe through this, others will become aware of the horrors perpetrated on her and on many others suffering from this terrible disease”.
"The day before she died I promised Sophia that her life would help many other people. She answered "then it was all worth it". Those were the last words she spoke. This website is for all the thousands of sufferers who have M.E. and their families."
Criona and her daughter Roisin are also among the contributors to the ground-breaking independent documentary film Voices from the Shadows, produced by Natalie Boulton and Josh Biggs, mother and brother of a severe M.E sufferer.
Voices from the Shadows won the “Audience Favourite International Documentary Award” at its World Premiere at Mill Valley Film Festival last month.
Invest in ME is hosting two UK screenings of this important film in Norwich on 2nd December and London on 7th December. Please click here for details. Tickets must be ordered in advance so please order without delay if you wish to attend.
Criona has updated her website with correspondence over the course of this year with the Chief Medical Officer and Minister for Care Services, among others, on a page titled WHO Cares? Very sadly, this page concludes with:
“The answer I found is transparently clear: nobody, but nobody, cares.... enough.” CrÃona Wilson, November 2011.
Our hearts and sincere condolences go out to Criona and her family. Criona may be contacted via the website or by email sophiaandme@hotmail.co.uk
