5 December 2011

One Last Goodbye

Yesterday marked the 3rd anniversary of the death of Lynn Gilderdale on 4th December 2008, after 17 years of suffering with very severe myalgic encephalomyeltis, which she had contracted at 14 years of age. Along with others who have lost their lives to the effects of this disease, Lynn is never far from our thoughts and our sincere condolences are with Lynn's family at this time; particularly with her mother Kay, whose deeply moving book, One Last Goodbye, is dedicated to her inspirational daughter. Kay is also a contributor to the film Voices from the Shadows, produced by Natalie Boulton and Josh Biggs, mother and brother of a sufferer of severe ME. In the Epilogue to One Last Goodbye, Kay writes:

“Meanwhile I have decided to carry on campaigning in Lynn's name to promote awareness of ME and to raise money for research. Research is the key to understanding this illness and Lynn has already made her own contribution. When her body was examined by the pathologist who specialised in M.E, he discovered “dorsal root ganglionitis” - infected nerve roots – and nodules of Nageotte, which are little tombs of dead cells, in her spinal cord. These would have caused her terrible pain and sensory nerve damage. They found similar cells in the body of Sophia Mirza, an ME sufferer who died in 2005 at the age of 32, and I believe in other sufferers. These findings are proof that Lynn's ME was a neurological disease”.

Lynn would say to her mother:

“The answers are within me, Mum. It will be too late for me but it will help others.”

Kay says, “I hope she was right and that some good will come out of her death and others will not have to suffer the way she did.”

We sincerely share that hope and extend our deep respect to Kay for all she has been through and our grateful thanks to her for all she is doing to help make that hope a reality. You can read more of Kay's memories of Lynn in our September post

“One Last Goodbye” by Kay Gilderdale is published by Ebury Press (ISBN 978-0091939144)

You can read some Amazon customer reviews here.
To help raise awareness, please ask your local library and local book shops to stock copies of this book and also Lost Voices.

You can buy One Last Goodbye from several shops or on-line in paperbook or ebook format from The Random House Group.

If you buy through the Easyfundraising site, e.g. from
Amazon or The Random House Group and choose Invest in ME as your cause, the charity will receive up to 2.5% of the price as a donation, with no extra cost to you.

UPDATEVoices from the Shadows is now available for those in USA and Canada to view online on MUBI and for those in UK and Europe to buy on DVD.  You can watch the trailer here.

To raise awareness, you could send these links to your MP, GP, local and national media.

The film won the “Audience Favourite Documentary Award” at its world première at Mill Valley Festival, California in October 2011. Invest in ME hosted the film's UK première in Norwich and also in London in December. Thank you for your support in raising awareness of severe M.E.

*Remember ME is a fundraising page on Everyclick for sponsors wishing to donate to our cause in memory of those who have lost their lives to this disease.